Links to Parent Information and Support Groups

• ABS Facebook Group
• ABS E-mail Support Group - Here is a wonderful place to connect with others who are dealing with ABS. You are not alone.
• Amniotic Band Syndrome Parents Message Board
• International Amniotic Band Syndrome Meet-up Day - Was your child affected by Amniotic Band Syndrome? Get together with other folks who either have kids with ABS or have it themselves!
• REACH- This UK group gives support and advice to families with children with a hand or arm deficiency.
• Helping Hands Foundation, Inc. is a not-for-profit support group made up of parents who have children with upper limb differences. 
• Limb Differences - an online resource for Families and Friends of Children with Limb Differences
• The Amputation Help and Resource Guide
• Reach Out Magazine bringing people with disABILITIES together online.
• SuperHands Network hope and encouragement for kids with upper limb differences
• The Clubfoot Club - our other site

Links to Medical Information

• HandWorld - Information for Patients - a great description of Syndactyly (webbed fingers) and the surgery required.
• Podiatry Network - Pediatric & Childhood Abnormalities
• International Birth Defects Information Systems - a listing of links to more information about ABS, medical papers, and studies.
• PubMed - Medical Articles type in amniotic band syndrome and search site

Specialists in fetal inutero surgery:

• FLORIDA:  Dr. Ruben Quintero a specialist in minimally invasive fetal surgery University of South Florida. E-Mail: rquinter@hsc.usf.edu Fetal Therapy Center Phone: Toll-free (877) FETAL77 or (877) 338-2577
• CALIFORNIA: Ramen H. Chmait, M.D. Director of Fetal Therapy and Minimally Invasive Fetal Surgery CHLA-USC Institute for Maternal Fetal Health E-Mail: chmait@usc.edu Phone: 323-671-6074

Distraction Augmentation Manoplasty Links: Dr. Norman Cowen of Washington D.C. correcting hand birth defects and growing new fingers

• Botei. com - One of Dr. Cowen's patients - Josefa's history; a girl that was born with missing fingers and toes. Explains the long treatment to reconstruct the fingers of her hands.

Resources:

• On the Other Hand - the site of an Occupational Therapist who has a congenital hand abnormality herself.  Good resource for information on alternative computer keyboards.
• kidscanplay.com - Pediatric Prosthetics