Amniotic Band Syndrome - ABS
Links to ABS Stories

These are links to ABS stories on other Web sites:

  • Mandi's Story  - Mandi was born with in 1987 with ABS affecting her hands. She is missing her 4th and 5th finger on the right hand and on the left, her thumb and pointer are stunted. Now at the age of 15 she has learned how to use her hands like anyone else. She is an avid basketball player, cheerleader, dancer and softball player.
  • Janice's Story -  born with ABS - bands were wrapped around her neck which caused cleft lip and palate, and deformities of her nose, she was also born with no eyes. Her soft spot on her head started from between the eyes and stopped at the lower back of her head. Part of her brain was in the nasal area, and she even had a second set of very small sinus cavities, that were connected by a weaving pattern of tubes that ended as pin point sized holes, just above her top lip. Some bands almost cut off the circulation in several fingers and around her ankle, causing unusual growth. One band totally cut off her big toe. Two fingers were fused together.  Both hips were dislocated, and one leg did not have a regular hip socket. Janice was adopted by a loving couple. 
  • Matthew's Story - ABS affected the right hand side of Matthew's face. He is blind in his right eye. 
  • Quentin's Story  born with amniotic banding affecting his right hand and right foot below the ankle. 
  • Riley Ann's Story born with an Incomplete Unilateral Cleft Lip and Complete Cleft Palate and Alveola Ridge (gum line), and Amniotic Band Syndrome affecting all fingers and thumb on her right hand, her index and middle fingers on her left hand and her middle and fourth toes on her left foot.
  • Joe's Story   In addition to banding on his left wrist, he had three raspberry-type hemangioma on his back, a subcutaneous hemangioma on his spine, a bilateral cleft lip and palate, one missing toe, two syndactyly toes and one toe bud.
  • Maya Imani was born in 1997 with Amniotic Band Syndrome. She was born with a partial left hand and no left arm. Prior to Maya, I had never heard of ABS. I now realize that it is more common than we know. Despite all odds, Maya is an example that one can do anything no matter the circumstances. Maya is a joy to those who comes into contact with her and her radiance has changed lives. Maya taught herself to tie her shoelaces at age 3 years old with one hand. Maya has had 3 prosthesis but they tend to slow her down. Read more of Maya's story from her heart at her web page.

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